Neurodegenerative diseases entail progressive brain and neuronal deterioration, which often impacts memory, movement, and cognition. With such significant and progressive disability, patients with neurodegenerative disorders become increasingly reliant on a care partner for decision-making and activities of daily life. As a result, caregivers play a crucial role, making it essential to consider the caregiver perspective to support neurodegenerative disease trial participation.
Read the full article, where we discuss some important factors and considerations for the caregiver, including:
- Promoting caregiver self-care and well-being
- The critical role caregivers play in healthcare and trial access
- Methods for caregiver engagement to foster better trial outcomes