Huntington’s disease (HD) is a debilitating neurodegenerative condition that drastically impacts the patient, family, and caregivers. Therefore, clinical trials must incorporate their voices into study design choices. As part of our commitment to the patient and caregiver voice, we conducted qualitative interviews with those impacted and discussed the critical findings in this article.
Read the article to learn more about:
- Symptom impacts on trial design
- Elements that contribute to patient participation motivation
- Support needs from drug developers and trialists
