Rally for
Documentary & Panel Discussion
10.07.25
Starts at 4 PM
Broad Institute
Cambridge, MA
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Join the Conversation
Together, we can amplify voices and create a more connected future for all.
10.07.25
Broad Institute
415 Main Street Cambridge, MA
Join researchers, advocates, caregivers, patients, and innovators for an evening that celebrates collaboration and resilience in the face of unprecedented challenges to the rare disease landscape.
Experience networking over food and drinks, a private screening of Rare: A Rare Disease Revolution, and a panel discussion with experts and advocates who are shaping the future of rare disease research.
Event Schedule
- 4 PM Reception
- 5:30 PM Screening
- 7:30 PM Panel
Voice from the Rare Disease Community
Our panel brings together voices from across science, clinical care, and patient advocacy to explore the challenges and opportunities ahead. They’ll share their perspectives on advancing innovation, strengthening collaboration, and building resilience within the rare disease community. Together, their insights will spark dialogue, deepen understanding, and inspire new ways to connect and create change.
Alexander Sousa, PhD
Postdoctoral Researcher at Broad Institute
Johanna Mondesir, MD, PhD
Medical Research Fellow at Every Cure
Nicolas Encina, MS, MBA
Executive Director, International Consortium on Newborn Sequencing at ICoNS
Lainey Moseley
Producer & Director
Timothy Yu, MD, PhD
Attending Physician, Division of Genetics and Genomics, at Boston Children’s Hospital
Winston Yan, MD, PhD
Director of Clinical Development at Arbor Biotechnologies
“Rare disease innovation thrives on collaboration, perseverance, and hope. The difficulties we face only challenge us to push forward in finding better treatments and outcomes for all of our patients.”
Derek Ansel, MS, LCGC, Vice President, Therapeutic Strategy Lead, Rare Disease