World Orphan Drug Congress
April 24-25, 2024 // Boston, MA
Join Worldwide Clinical Trials at World Orphan Drug Congress.
0
days leftAbout event
WODC is a place to meet and brainstorm ways to advance orphan drug development and improve access to life-saving therapies. If you are attending, stop by booth #319 and say hello to our team.
Juliane K. Mills, MS, MPH, Therapeutic Strategy Lead, Rare Disease, will be presenting “Uniting for the Uncommon: Successes and Lessons in Pharma-Patient Advocacy Partnerships” on April 24 at 12:05 P.M EST. Attendees will gain insight into the following:
- This will be a transparent discussion on the types of collaborations and agreements that have worked (or not worked) between rare disease patient advocacy groups and drug development companies.
- Learn what you’re doing right (or wrong!) when trying to build bridges with advocacy organizations.
- Learn key questions to ask about advocacy organizations and drug companies before starting a partnership.
Derek Ansel, Executive Director, Therapeutic Strategy Lead, Rare Disease, will lead a roundtable discussion titled “Shifting Strands: Operational Challenges and Ethical Dilemmas of Genetic Testing” on April 24, at 2:15 P.M EST.
Date
Wednesday to Thursday
April 24- 25, 2024
Venue
Boston Convention and Exhibition Center
415 Summer Street, Boston, MA 02210
Juliane K. Mills, MS, MPH
Therapeutic Strategy Lead, Rare Disease
Juliane provides strategic support for the development of patient-focused Phase I-IV rare disease trials and is passionate about advancing rare disease clinical research. Juliane innovates study solutions by combining her therapeutic and operational expertise to make clinical studies more accessible to patients and non-traditional investigators.
