World Orphan Drug Congress

April 24-25, 2024 // Boston, MA

Join Worldwide Clinical Trials at World Orphan Drug Congress.

8

days left

About event

WODC is a place to meet and brainstorm ways to advance orphan drug development and improve access to life-saving therapies. If you are attending, stop by booth #319 and say hello to our team.

Juliane K. Mills, MS, MPH, Therapeutic Strategy Lead, Rare Disease, will be presenting “Uniting for the Uncommon: Successes and Lessons in Pharma-Patient Advocacy Partnerships” on April 24 at 12:05 P.M EST. Attendees will gain insight into the following:

  • This will be a transparent discussion on the types of collaborations and agreements that have worked (or not worked) between rare disease patient advocacy groups and drug development companies.
  • Learn what you’re doing right (or wrong!) when trying to build bridges with advocacy organizations.
  • Learn key questions to ask about advocacy organizations and drug companies before starting a partnership.

Derek Ansel, Executive Director, Therapeutic Strategy Lead, Rare Disease, will lead a roundtable discussion titled “Shifting Strands: Operational Challenges and Ethical Dilemmas of Genetic Testing” on April 24, at 2:15 P.M EST.

Date

Wednesday to Thursday
April 24- 25, 2024

Venue

Boston Convention and Exhibition Center
415 Summer Street, Boston, MA 02210

Space is limited.
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