From Lab to Clinical Trial: Rare Disease and Newborn Screening
In this webinar, our speakers talk about how newborn screening (NBS) has helped the rare disease community and the potential for closer partnership in clinical trials. Topics will include:
• History and purpose of NBS in the US and globally
• Diagnostic journey for rare disease patients and the role of NBS
• NBS public policy
• Challenges and limitations of screening programs and addition of more panels
• Advocacy efforts for NBS
• Why NBS is important for enrollment of rare disease clinical trials
Your form has been successfully submitted!
VIEW VIDEO
